by lonniehamil | Apr 2, 2025 | Uncategorized
From Ray Gould: Just a quick update. We finally got results from the biopsy – it took much longer than expected. The results did not specifically point to a specific cause of Daniel’s elevated ALT/inflamed liver. However, the doctors were able to rule out...
by Ross Hamil | Mar 6, 2025 | Uncategorized
A Note on Our Recent Newsletter Pause We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused. We...
by lonniehamil | Feb 20, 2025 | Uncategorized
Update on Brynn from Tiffany: “Some days she still just needs rest. We are truly grateful she is doing so well. John and I were reminded last night how things could have been very different for her and still can. We ask for continued prayers for her as she works...
by lonniehamil | Feb 20, 2025 | Uncategorized
Update on Adilayah:February is Noonan Syndrome and Heart awareness month. This month has been so special for me and our family ever since we have seen our baby girl fight through everything she has been through so far and she is SOOOO strong ! When we found out about...
by lonniehamil | Feb 20, 2025 | Uncategorized
Kaiden has had a pretty good day except a small moment this morning. His heart rate was all over the place suddenly. He runs around 110. But he was jumping to 150-180 then drops to the 80s. They did a neurological test and an EKG. But things looked good. They think he...
by lonniehamil | Feb 20, 2025 | Uncategorized
SMALL CELEBRATIONS TODAY! Xray from last night and this morning are showing small improvements. We are off of the meds that cause clotting and they said that he has better circulation in his leg and thru ECMO machine. Cultures are still coming back negative. Also...
