5/14 Cool Post on Kylie!

5/14 Cool Post on Kylie!

I am SO sorry for spamming yall’s newsfeed today. I JUST got the green light to share our secret! NOW, for the BIG REVEAL! Good Morning America flew in from New York this morning to do a segment on Kylie’s journey We do not have an air date just yet but as soon...
5/14 Cool Post on Kylie!

5/13 Update on Kylie Brooke

Kylie is experiencing awful withdrawals. She has a fever, diarrhea, high heart rate, and increased breathing.They are doing a full work up to make sure she doesn’t have another infection but it seems to be withdrawals.She has received methadone to help with the...
5/9 Kylie Brooke

5/9 Kylie Brooke

We have the results back from the biopsy! Drum roll  NO REJECTION! God is SO GOOD! They did find a bacterial infection in the lungs but they are treating it with breathing treatments.Kylie has officially been moved to TICU!(picture below of my helper)Kylie did amazing...
5/8 Update on Kylie

5/8 Update on Kylie

We have been cleared to move forward towards decannulation! The airways look great! The next step is to do some passy muir valve trials. This will restrict airflow through her trach area and force her to breathe through her nose and mouth.If she does well with that...
5/1 Update on Kylie

5/1 Update on Kylie

They are discharging Kylie in TWO WEEKS!! As long as Kylie is off her sedation medication then they plan on discharging her in two weeks!I can’t even picture it in my head. It feels like a dream. We have waited for that day for SO long!! I am so nervous and excited...

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