by lonniehamil | Apr 24, 2024 | Uncategorized
Kylie is out of surgery. It ended late last night.There was a small problem while she was intubated through her mouth, the place where her trach was had stretched and air was escaping. So they decided to put her trach back in and that helped.When the lungs are without...
by lonniehamil | Apr 24, 2024 | Uncategorized
As of 4:30 pm her belongings were moved from pediatric icu to cardiac icu room and they said kylie is doing really good in surgery! Keep the prayers going!...
by lonniehamil | Apr 17, 2024 | Uncategorized
Kylie was just taken into the Operating Room. The donor will go into surgery around 9am. We should have visual confirmation around 10am. Once we have visual confirmation they will fly the organ to Kylie. While the organ is in transit they will time it precisely so...
by lonniehamil | Apr 17, 2024 | Uncategorized
Update on Kylie: This is now a lung transplant surgery AND a heart surgery. Unfortunately, another hole was found in Kylie’s heart. During surgery they will now need to stop her heart and repair the holes. This adds more risks to an already very risky surgery. Kylie’s...
by lonniehamil | Apr 17, 2024 | Uncategorized
Update on Shawna Foust: From Ralph: “So a little over six months ago, Shawna was diagnosed with Glioblastoma, an ‘incurable’ form of brain cancer. We were told she only had three to six months. We’ll, it’s been seven months, and she’s still with us… But God. He...
by lonniehamil | Apr 17, 2024 | Uncategorized
UPDATE on KYLIE BROOKEPrayer Warriors,Kylie has a donor!!!!!!…please pray for her and my mother as she goes thru surgery and also for the family who made the decision to help another baby as they lost their’s!Thanks so...
by lonniehamil | Apr 12, 2024 | Uncategorized
Update on Kylie from her mom: Kylie Brooke turned 5 months old yesterday. She has been in the ICU for 154 days. Kylie has been showing off the past couple days. She has impressed and shocked her doctors! Her FIO2 requirements have dropped to 40-45.With her disease...
by lonniehamil | Apr 12, 2024 | Uncategorized
Update on Kylie from her mom: We were told that the oldest baby that TCH has had live with this disease was 5 months old (he was transplanted at 5 months old). Kylie will be 5 months old tomorrow. She is still at the top of the transplant list and we are accepting all...
by lonniehamil | Apr 12, 2024 | Uncategorized
Update on Kylie: Kylie did have surgery still on Wednesday to place the GJ tube. She handled it very well Since Wednesday night, Kylie’s heart rate has been spiking to the 220s, which is the highest I have ever seen it. Her blood pressure is high. Also, Kylie’s...
by lonniehamil | Apr 12, 2024 | Uncategorized
Kylie’s First Easter I hope everyone had an amazing Easter I am so grateful that Jesus died on the cross for my sins This weekend was amazing for my family. My oldest daughter (McKenzie) is here with us this week (it’s her spring break) My whole family flew in to be...
