Savana’s Wagon Ride!
“After a few more blood transfusions since my last post things have been much better today! The blood no longer looks fresh in her diapers. We restarted her NG tube feeds and liquid diet today. She walked around in her room a tiny bit today and finally got to leave the room for a wagon ride around the hallways. She had to agree to wear a mask and she did a great job keeping it on! She won’t get to be out in public much over the next 6 months, but when she does get out she will need to wear a special mask (which we will be getting soon) so she doesn’t get sick.
We got a few more smiles and laughs today which sure are nice to see and hear.” 😊