by lonniehamil | Apr 12, 2024 | Uncategorized
Update on Kylie from her mom: We were told that the oldest baby that TCH has had live with this disease was 5 months old (he was transplanted at 5 months old). Kylie will be 5 months old tomorrow. She is still at the top of the transplant list and we are accepting all...
by lonniehamil | Apr 12, 2024 | Uncategorized
Update on Kylie: Kylie did have surgery still on Wednesday to place the GJ tube. She handled it very well Since Wednesday night, Kylie’s heart rate has been spiking to the 220s, which is the highest I have ever seen it. Her blood pressure is high. Also, Kylie’s...
by lonniehamil | Apr 12, 2024 | Uncategorized
Kylie’s First Easter I hope everyone had an amazing Easter I am so grateful that Jesus died on the cross for my sins This weekend was amazing for my family. My oldest daughter (McKenzie) is here with us this week (it’s her spring break) My whole family flew in to be...
by lonniehamil | Apr 12, 2024 | Uncategorized
Update on Kylie: Kylie is not enjoying her decrease of pain medication from yesterday. She has been suffering from withdrawal today. Yesterday she was so happy, she was smiling during therapy and moving her mouth like she was trying to talk to momma. I can’t wait till...
by Ross Hamil | Apr 12, 2024 | Uncategorized
Update from Kylie’s Mother “After taking the past 48 hours to cry, pray, cuddle Kylie, talk with Kylie’s doctors and cry and pray some more, her dad and I have decided to accept offers from all donors. 🫁 The scary part is they have never performed...
by lonniehamil | Apr 9, 2024 | Uncategorized
Note: This is the frst of several posts on Kylie. I realized that I had missed coping these over from FaceBook. My apologies! Meet Kylie Brooke! Kylie was born Nov. 10th with surfactant B deficiency. The easiest way to explain her disease is that her lungs don’t make...
