by lonniehamil | May 19, 2025 | Uncategorized
Well, Miss Kylie decided she wanted to have a sleepover in the Emergency Room last night. While I was giving her medicine to her last night, I turned for two seconds to grab the water to flush her meds and she grabbed her extension and pulled her GJ tube right out....
by lonniehamil | May 19, 2025 | Uncategorized
From Daniel’s Dad: Yesterday was a day to cherish as we celebrated our son’s seventh birthday with a full slate of activities. It was both a sweet and sobering time—a moment to reflect and give thanks. Since the biopsy, Daniel has been on a high dose of...
by lonniehamil | May 19, 2025 | Uncategorized
I met David’s son, Ryder, at lake Ivie earlier this week. While visiting, I found out about David’s ALS. Hopefully I’ll be heading over to meet him in person really soon! This is what Ryder shared with me: “Dad developed a weakness in his arms after a neck surgery in...
by lonniehamil | May 19, 2025 | Uncategorized
Today was a very special day for this young lady and her family! Brynn Burk got to RING THE BELL! This from her mom, Tiffany: We have had a great day today. Honestly, we have been dreaming of this day for a long long time. We have talked about seeing the light at the...
by lonniehamil | May 19, 2025 | Uncategorized
This message from Tiffany Burk makes my heart jump with joy!!!“Just got the call. Labs say it’s GONE! We are incredibly grateful. We will start the next chapter with growth hormones and will do another MRI in 3 month. Thank you for praying and please continue to...
by lonniehamil | Apr 2, 2025 | Uncategorized
From Ray Gould: Just a quick update. We finally got results from the biopsy – it took much longer than expected. The results did not specifically point to a specific cause of Daniel’s elevated ALT/inflamed liver. However, the doctors were able to rule out...
