by lonniehamil | Apr 30, 2026 | Uncategorized
Kylie received the chemotherapy drug for rejection on Tuesday. The next treatment will be given on Monday. Then we will wait about a week and retest her antibodies. It is crucial that they have weakened. I’m believing and praying that they are completely gone...
by lonniehamil | Apr 30, 2026 | Uncategorized
They have determined that the cancer is in all of the lymph nodes in the neck and right arm. Carol was supposed to hear back from MD Anderson today to make plans for her to go there. She isn’t feeling well at all but is hoping that MD Anderson will get her on the...
by lonniehamil | Apr 30, 2026 | Uncategorized
Well, we received some not great news yesterday. Remember how our team thought we may have tested too early for the antibodies and wanted to do a retest? Well, the retest results came back showing over 10,000 of that specific antibody and a few others… and it...
by lonniehamil | Apr 30, 2026 | Uncategorized
Keith is really struggling with the pain from his cancer. Sometimes it seems to be from his head to his toes. Even before the cancer, depression was a big issue in his life. He will be the first to tell you that most folks go the other way when they encounter someone...
by lonniehamil | Apr 30, 2026 | Uncategorized
Well, we are officially Texans! Last night, we received the key to our new home! My older two babies are on their way here as we speak! They should be here by tonight! I can’t even express how excited I am to see them. It’s been WAY too long. From the...
by lonniehamil | Apr 30, 2026 | Uncategorized
This life is such a roller coaster… They adjusted Kylie’s vent settings yesterday to a higher setting and she was doing well for a few hours. Less retractions and she seemed more comfortable, and so happy This morning on the new vent settings, she is...
by lonniehamil | Apr 30, 2026 | Uncategorized
I just finished texting with Roy, Carol’s husband and the results from her pet scan were not favorable. One a positive note, the cancer doesn’t appear to be in any organs. The biggest challenge is they diagnosed stage 3 cancer in the lymph nodes around her...
by lonniehamil | Apr 30, 2026 | Uncategorized
“Linda is not doing well, we connected with Alive Hospice 2 weeks ago, tough decision but it was a good decision, they have been very helpful. Thursday night/Friday morning “something” happened, she made a major change, when she woke up Friday morning she knew nothing...
by lonniehamil | Apr 30, 2026 | Uncategorized
Miss Kylie had to go on higher ventilator settings. She was having a lot of belly breathing and retractions. This is exactly the pattern I saw when we were discharged. She was doing really well then the belly breathing started then higher breathing support was needed....
by lonniehamil | Apr 30, 2026 | Uncategorized
Finally, I have good news to share! I’m going to try really hard to explain this and I hope I don’t confuse everyone. So after talking more with the team and looking over the test results from that treatment I am feeling more hopeful. Even though the...
