by lonniehamil | May 19, 2025 | Uncategorized
This from Chelsea at around 2 pm: Dr came in last night and said there is clotting in the brain..they would normally give blood thinners but considering his brain is bleeding that isn’t an option at this time… a special neuro team will be in mid afternoon...
by lonniehamil | May 19, 2025 | Uncategorized
This little man was having trouble breathing last week. His parents, Chelsea and Antonio, took him to the hospital. He was initially diagnosed with COVID. He seemed to be getting some better, and then yesterday he had a stroke. The mri came back and showed bleeding on...
by lonniehamil | May 19, 2025 | Uncategorized
Well, Miss Kylie decided she wanted to have a sleepover in the Emergency Room last night. While I was giving her medicine to her last night, I turned for two seconds to grab the water to flush her meds and she grabbed her extension and pulled her GJ tube right out....
by lonniehamil | May 19, 2025 | Uncategorized
From Daniel’s Dad: Yesterday was a day to cherish as we celebrated our son’s seventh birthday with a full slate of activities. It was both a sweet and sobering time—a moment to reflect and give thanks. Since the biopsy, Daniel has been on a high dose of...
by lonniehamil | May 19, 2025 | Uncategorized
I met David’s son, Ryder, at lake Ivie earlier this week. While visiting, I found out about David’s ALS. Hopefully I’ll be heading over to meet him in person really soon! This is what Ryder shared with me: “Dad developed a weakness in his arms after a neck surgery in...
by lonniehamil | May 19, 2025 | Uncategorized
Today was a very special day for this young lady and her family! Brynn Burk got to RING THE BELL! This from her mom, Tiffany: We have had a great day today. Honestly, we have been dreaming of this day for a long long time. We have talked about seeing the light at the...
by lonniehamil | May 19, 2025 | Uncategorized
This message from Tiffany Burk makes my heart jump with joy!!!“Just got the call. Labs say it’s GONE! We are incredibly grateful. We will start the next chapter with growth hormones and will do another MRI in 3 month. Thank you for praying and please continue to...
by lonniehamil | Apr 2, 2025 | Uncategorized
From Ray Gould: Just a quick update. We finally got results from the biopsy – it took much longer than expected. The results did not specifically point to a specific cause of Daniel’s elevated ALT/inflamed liver. However, the doctors were able to rule out...
by Ross Hamil | Mar 6, 2025 | Uncategorized
A Note on Our Recent Newsletter Pause We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused. We...
by lonniehamil | Feb 20, 2025 | Uncategorized
Update on Brynn from Tiffany: “Some days she still just needs rest. We are truly grateful she is doing so well. John and I were reminded last night how things could have been very different for her and still can. We ask for continued prayers for her as she works...
