6/14 Kylie Update

6/14 Kylie Update

Update on Kylie: We received all of Kylie’s equipment from the insurance company!! Her dad and I are rooming in this weekend and we will be tested on all her care. Please pray we do well Our simulation test is Monday afternoon and discharge is still set for...
6/14 Brynn Update

6/14 Brynn Update

From Tiffany about Brynn: We are in recovery. Port is in for chemo. She’s sleeping now because we are waiting on a room to be cleaned. We will have a MRI and an audiologist check her later today as a baseline before chemo. (There is a risk of hearing loss...
6/13 Kylie Update

6/13 Kylie Update

Update on Kylie: Kylie is 7 months old! 214 days in ICU Kylie is officially off of fentanyl and morphine for the first time in her life!!!! For the first few months of Kylie’s life she was on fentanyl and for the past five months she has been on morphine. She has...
Update on Brynn (6-13-24)

Update on Brynn (6-13-24)

I just texted with Tiffany, Brynn’s mom. This was her reply: “We are at the cancer center now. We are all in agreement to get port today and start chemo just trying to get everyone’s ducks in a row . Please pray. We are a little nervous.” Let’s keep the prayers...
Update on Kylie (6-13-24)

Update on Kylie (6-13-24)

Update on Kylie: Kylie is 7 months old! 214 days in ICU Kylie is officially off of fentanyl and morphine for the first time in her life!!!! For the first few months of Kylie’s life she was on fentanyl and for the past five months she has been on morphine. She has...
5/14 Cool Post on Kylie!

5/14 Cool Post on Kylie!

I am SO sorry for spamming yall’s newsfeed today. I JUST got the green light to share our secret! NOW, for the BIG REVEAL! Good Morning America flew in from New York this morning to do a segment on Kylie’s journey We do not have an air date just yet but as soon...