A Note on Our Recent Newsletter Pause
We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused.
We are grateful for your understanding and patience as we worked diligently to resolve this issue. We are pleased to inform you that the problem has been fixed, and our newsletter will resume its regular schedule. Thank you for your continued support and engagement.
Catch Up on Our Latest Posts
2/18 Update on Baby Adaliyah
Update on Adilayah:February is Noonan Syndrome and Heart awareness month. This month has been so special for me and our family ever since we have seen our baby girl fight through everything she has been through so far and she is SOOOO strong ! When we found out about...
Update on Brynn (6-13-24)
I just texted with Tiffany, Brynn’s mom. This was her reply: “We are at the cancer center now. We are all in agreement to get port today and start chemo just trying to get everyone's ducks in a row . Please pray. We are a little nervous.” Let’s keep the prayers going...
Update on Kylie (6-13-24)
Update on Kylie: Kylie is 7 months old! 214 days in ICU Kylie is officially off of fentanyl and morphine for the first time in her life!!!! For the first few months of Kylie’s life she was on fentanyl and for the past five months she has been on morphine. She has...


