A Note on Our Recent Newsletter Pause
We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused.
We are grateful for your understanding and patience as we worked diligently to resolve this issue. We are pleased to inform you that the problem has been fixed, and our newsletter will resume its regular schedule. Thank you for your continued support and engagement.
Catch Up on Our Latest Posts
7/25 Kylie
Edit: They tried to take Kylie off the ventilator but she ultimately had to be placed back on the ventilator. Update on Kylie: Kylie didn't have a good night She has been in a lot of pain. They are giving her a lot of pain medication (oxi, morphine etc) Despite the...
11/16 Update on Baby Kylie
Update on Kylie: We have received some not so great news… Kylie had her bronchoscopy on Monday, her ENT team at Texas Children’s hospital joined in on the procedure. They wanted to look and see how her airways looked so we could decannulate soon. Kylie’s airways do...
11/16 Update on Daniel Gould
From Ashly, Daniel's mom: "Day 77- we have been home for several weeks now! Ray had updated the caringbridge page on day 48 but I somehow forgot to update on here. It has been so amazing to be back home, we’ve settled in to our new normal! We have been allowed to see...



