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Catch Up on Our Latest Posts

2/9 Kylie

2/9 Kylie

Kylie will go under tomorrow to have a bronchoscopy to test for a fungal infection. Her oxygen requirements have rose slightly overnight. I talked to the head doctor of the lung transplant team at Children’s National and he truly believes this is related to AMR...

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AJ Update 5/14 – from Mom

AJ is on the lowest settings possible on the vent.. He was on cpap all night long with no alarms and no apnea spells.They started him on steroids to strengthen his throat and lungs. They will stop his feeds at 4am, and 6 hours after, extubate! It's all gonna depend on...

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5/12 AJ

From AJ's Mom: “The goal for this week is to get the breathing tube out...they are slowly weining him down day by day.. Radiology is in between decisions about the spleen, one says it has a laceration the other says it does not...me personally I don't think anything...

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