Quick update:
They have decided to keep Kylie in the ICU until next week.
They want to keep her and give her the next dose of the treatment for rejection on Friday.
Then we will wait a few days and test to see if it’s working.
Kylie’s heart rate has been high in the 170. But I feel pretty confident she is dehydrated so we will be giving extra Pedialyte.
The amazing people at Texas Children’s asked Kylie to submit her feet print to be put on the golfers cleats for the Texas Children’s Golf opening. They even brought by a gift for Kylie and I (at Christmas they even sent us a cookie making kit).
I truly pray everyone can have a relationship with their hospital like we do with TCH. They feel like family and I am so grateful for them.
Kylie got to get out of the room for a little while yesterday. She has been so cranky and even growling at people who walk in the room. I was hoping she would feel better with a change of scenery.
Poor thing is just ready to get out of the hospital. Makes my heart hurt for her.
As always, we love you all so much and I am truly so grateful for you all. Your generosity and support leaves me speechless. Thank you from the bottom of my heart
