Update on Kylie:
Surgery has been cancelled… again
Kylie is still fighting off RSV and is not able to go under anesthesia with her symptoms.
Kylie has increased secretions in her trach and I’m suctioning her often. Her sats are ranging from 93-99.
She has been pulling at her throat so I think her throat is sore. Once I give her Tylenol she is herself again.
Overall, I think she is doing well considering her history.
However, Texas Children’s wants to arrange an ambulance to take Kylie to Children’s National in DC.
Personally, I don’t think Kylie is doing that bad but I’m not the professional. Obviously, I will do whatever they think is best for Kylie. We have been blessed with an amazing medical staff and I fully trust them.
As of right now, they are watching her closely and will tell me what they decide the next steps are for Kylie.
Please pray that Kylie starts to feel better and that we don’t have to spend Christmas in the hospital.