Last night was one of the worst nights in my life…
I know everyone is worried so I’ll just do a quick update. I don’t feel mentally okay right now.
I feel like I am in a dream and nothing feels real.
Everything was fine. We were playing in the backyard and then we came inside and I don’t know if Kylie was upset that we came inside, but her heart rate started going up and she got really irritated.
She was on the oxygen tank and I maxed it out because her sats started to drop.
I yelled for Jake to get me her ventilator (she usually only needs that at night) so I could give her the extra pressure to bring her SATs up.
All of a sudden, her sats started dropping really fast so I started bagging her.
At one point her oxygen dropped to 17 and she turned the most awful gray color I’ve ever seen.
McKenzie walked downstairs at this moment and saw Kylie and the way that she looked really scared McKenzie and the worst screams came out of my child. I’ve never heard McKenzie cry like that before and I hate that she had to witness that.
Jake quickly got the kids into the bedroom so they wouldn’t have to see what was happening.
I’m almost positive there was a few seconds that we lost Kylie and I don’t think I’ll ever be the same after last night.
I just kept bagging her and counting until EMS came.
Once we got to the ER, she had another three episodes where her oxygen would not come up. They had the EpiPen ready because they were certain her heart was about to stop. They asked me if I wanted them to bring her back if something happened and I said yes.
I was so scared.
Fortunately, they never needed to use the pens because once they put her on full vent settings (we only have BiPAP settings at home) then she completely turned a corner and started to improve.
They quickly got us a room in the PICU, I immediately felt a weight off my shoulders because those are our people, and I trust them. I truly love them.
After doing a work up the ICU doctors think that the rhinovirus had caused Kylie’s lungs to just tire out and her reserve was depleted. Her lungs really needed to rest and that’s why we think when she got on the full ventilator, she started doing so much better.
Now we need to do a full work up on everything and see what role the rejection played in all this.
Please, please pray for Kylie because I was so close to losing her last night and at one point I really thought I had.
Please pray for McKenzie because last night was really hard on her too.
