by lonniehamil | Jun 27, 2024 | Uncategorized
From Tiffany about Brynn: We are in recovery. Port is in for chemo. She’s sleeping now because we are waiting on a room to be cleaned. We will have a MRI and an audiologist check her later today as a baseline before chemo. (There is a risk of hearing loss...
by lonniehamil | Jun 27, 2024 | Uncategorized
Update on Kylie: Kylie is 7 months old! 214 days in ICU Kylie is officially off of fentanyl and morphine for the first time in her life!!!! For the first few months of Kylie’s life she was on fentanyl and for the past five months she has been on morphine. She has...
by Ross Hamil | Jun 13, 2024 | Uncategorized
I just texted with Tiffany, Brynn’s mom. This was her reply: “We are at the cancer center now. We are all in agreement to get port today and start chemo just trying to get everyone’s ducks in a row . Please pray. We are a little nervous.” Let’s keep the prayers...
by Ross Hamil | Jun 13, 2024 | Uncategorized
Update on Kylie: Kylie is 7 months old! 214 days in ICU Kylie is officially off of fentanyl and morphine for the first time in her life!!!! For the first few months of Kylie’s life she was on fentanyl and for the past five months she has been on morphine. She has...
by lonniehamil | May 15, 2024 | Uncategorized
I am SO sorry for spamming yall’s newsfeed today. I JUST got the green light to share our secret! NOW, for the BIG REVEAL! Good Morning America flew in from New York this morning to do a segment on Kylie’s journey We do not have an air date just yet but as soon...
by lonniehamil | May 15, 2024 | Uncategorized
Kylie is experiencing awful withdrawals. She has a fever, diarrhea, high heart rate, and increased breathing.They are doing a full work up to make sure she doesn’t have another infection but it seems to be withdrawals.She has received methadone to help with the...
by lonniehamil | May 15, 2024 | Uncategorized
We have the results back from the biopsy! Drum roll NO REJECTION! God is SO GOOD! They did find a bacterial infection in the lungs but they are treating it with breathing treatments.Kylie has officially been moved to TICU!(picture below of my helper)Kylie did amazing...
by lonniehamil | May 15, 2024 | Uncategorized
We have been cleared to move forward towards decannulation! The airways look great! The next step is to do some passy muir valve trials. This will restrict airflow through her trach area and force her to breathe through her nose and mouth.If she does well with that...
by lonniehamil | May 15, 2024 | Uncategorized
They are discharging Kylie in TWO WEEKS!! As long as Kylie is off her sedation medication then they plan on discharging her in two weeks!I can’t even picture it in my head. It feels like a dream. We have waited for that day for SO long!! I am so nervous and excited...
by lonniehamil | May 15, 2024 | Uncategorized
Unfortunately, Kylie’s white blood cell count is high. Poor baby is not feeling well today It seems to be bacterial because her cultures are starting to grow something. At least it’s not viral. I refuse to let the devil get me down after an amazing week last week.Her...
