by lonniehamil | May 15, 2024 | Uncategorized
Kylie is experiencing awful withdrawals. She has a fever, diarrhea, high heart rate, and increased breathing.They are doing a full work up to make sure she doesn’t have another infection but it seems to be withdrawals.She has received methadone to help with the...
by lonniehamil | May 15, 2024 | Uncategorized
We have the results back from the biopsy! Drum roll NO REJECTION! God is SO GOOD! They did find a bacterial infection in the lungs but they are treating it with breathing treatments.Kylie has officially been moved to TICU!(picture below of my helper)Kylie did amazing...
by lonniehamil | May 15, 2024 | Uncategorized
We have been cleared to move forward towards decannulation! The airways look great! The next step is to do some passy muir valve trials. This will restrict airflow through her trach area and force her to breathe through her nose and mouth.If she does well with that...
by lonniehamil | May 15, 2024 | Uncategorized
They are discharging Kylie in TWO WEEKS!! As long as Kylie is off her sedation medication then they plan on discharging her in two weeks!I can’t even picture it in my head. It feels like a dream. We have waited for that day for SO long!! I am so nervous and excited...
by lonniehamil | May 15, 2024 | Uncategorized
Unfortunately, Kylie’s white blood cell count is high. Poor baby is not feeling well today It seems to be bacterial because her cultures are starting to grow something. At least it’s not viral. I refuse to let the devil get me down after an amazing week last week.Her...
by lonniehamil | May 15, 2024 | Uncategorized
AND JUST LIKE THAT WE ARE OFF THE VENT!!! Kylie is officially off the ventilator! She now has a trach collar which is just a humidifier for her airways. She does not require any extra help from the ventilator! She will probably have the trach collar through the...
