A Note on Our Recent Newsletter Pause

We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused.

We are grateful for your understanding and patience as we worked diligently to resolve this issue. We are pleased to inform you that the problem has been fixed, and our newsletter will resume its regular schedule. Thank you for your continued support and engagement.

Catch Up on Our Latest Posts

9/17 Update on Brynn

9/17 Update on Brynn

From Tiffany Burk about Brynn: “We went to see her endocrinologist this morning to check the growth hormones. We found out that she has grown 2 inches since May. PTL!!!! (That's 1/2 an inch a month!) He's happy with her progress and frankly so are we. We will have...

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1/6 Ella Update

From Whitney Kasinger about Ella: Ella starts Phase 3 - Delayed Intensification - next Tuesday. This is a 50 day phase (January 14-March 4) bar any setbacks. If at any point she doesn't make counts, the date is pushed forward. Here is her treatment calendar so that,...

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12/30 Update on Daniel

This post is from Ashly Gould, about Daniel, 4 days ago (my apologies): This Christmas season looked a little different this year for our family. No holiday parties, Gaylord on ice, or mall Santa’s. Most the shopping was done online (which would have happened either...

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