A Note on Our Recent Newsletter Pause
We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused.
We are grateful for your understanding and patience as we worked diligently to resolve this issue. We are pleased to inform you that the problem has been fixed, and our newsletter will resume its regular schedule. Thank you for your continued support and engagement.
Catch Up on Our Latest Posts
1/20 Update on Kylie
Update on Kylie, from Ashley: “Kylie is still requiring oxygen to keep her sats up. At one point she dropped to 69 and it was very scary. Luckily as soon as we got home our DME company set us up with oxygen equipment. The CT scan came back stable from the last scan...
AJ Update 5/14 – from Mom
AJ is on the lowest settings possible on the vent.. He was on cpap all night long with no alarms and no apnea spells.They started him on steroids to strengthen his throat and lungs. They will stop his feeds at 4am, and 6 hours after, extubate! It's all gonna depend on...
5/12 AJ
From AJ's Mom: “The goal for this week is to get the breathing tube out...they are slowly weining him down day by day.. Radiology is in between decisions about the spleen, one says it has a laceration the other says it does not...me personally I don't think anything...


