Kylie hasn’t had a good week
She currently has been running a fever and her heart rate has been very high.
A viral panel has came back negative but now they are doing a sepsis
work up.
Please pray Kylie starts to feel better.
Today is Kylie’s two year transplant anniversary. Two years ago today a mom made the selfless decision to donate her baby’s precious lungs to Kylie. I will forever be grateful to that mother for giving Kylie a chance at life.
It’s so hard as a mom not to take things that happen to our kids personally. I feel so guilty that Kylie is rejecting that precious baby’s lungs. I don’t know what I could have done differently but like I said, it’s hard not to feel like maybe I could have done more.
But I am trusting God that this treatment will work and we can slow down the rejection.
Please keep that precious family in your prayers today. I can’t imagine their
pain
As always, I love you all so much and I couldn’t do this journey without you
all.
*Picture from Easter Sunday
