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Catch Up on Our Latest Posts
4/27 Urgent – Kylie
Last night was one of the worst nights in my life... I know everyone is worried so I'll just do a quick update. I don't feel mentally okay right now. I feel like I am in a dream and nothing feels real. Everything was fine. We were playing in the backyard and then we...
2/5 Kylie
Well, after speaking with transplant team and no improvement in Kylie’s oxygen needs. We are heading to Children’s National in DC by ambulance to see if their transplant team can figure out what is going on with Kylie. The fear Is this Is related to her rejection. If...
2/4 Kylie
*** PRAYER REQUEST *** So our team found a small bacterial infection on Kylie’s recent cultures. They treated it with a high dose of antibiotics. They said that this bacteria doesn’t usually cause oxygen drops but it can. I was told that if we don’t see any...
