A Note on Our Recent Newsletter Pause
We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused.
We are grateful for your understanding and patience as we worked diligently to resolve this issue. We are pleased to inform you that the problem has been fixed, and our newsletter will resume its regular schedule. Thank you for your continued support and engagement.
Catch Up on Our Latest Posts
5/29 Update for Victoria Burns
Victoria's mom attended a meeting with chief neurologist at Charitie yesterday. Victoria is having a minor surgery on Tuesday to move her feeding tube. Also will have a cat scan to determine if her pneumothorax is corrected. If not, would preclude from flying for time...
David Watkins
I received these 2 texts ( about an hour apart) from Laura about Dave: "I’ve brought Dave to the cancer center for IV hydration. His nausea is really bad, he’s very jerky all over, confused and needs walker to walk. I’ll keep you posted. " "They are going to admit...
Cade Greathouse
Mike and Debbie’s grandson From Debbie: Cade Greathouse He was diagnosed with HSP Henoch-Schönlein purpura. It is a disease that usually attacks children ages 2-13. Mostly boys, but girls too. It usually follows a round of flu or strep throat. His body still thinks...


