A Note on Our Recent Newsletter Pause
We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused.
We are grateful for your understanding and patience as we worked diligently to resolve this issue. We are pleased to inform you that the problem has been fixed, and our newsletter will resume its regular schedule. Thank you for your continued support and engagement.
Catch Up on Our Latest Posts
1/30 Brynn Burks
From Tiffany about Brynn Burks: “We were sad to see that Brynn's Oncologist left UMC late 2025 and we received a new one in February. Our new to us Oncologist, Dr Barr, was very informative about some things and we will check her brain and spine this time. We haven't...
11/21 Kylie Update
From Ashley: "Well, it looks like Kylie will be admitted the week after Thanksgiving at Children’s National in DC for the chemo drug treatment. (We are still waiting on the exact date.) Kylie has not been feeling well the past 24 hours and has been vomiting. I am...
11/17 Kylie Update
Kylie will be receiving her monthly IVIG tomorrow morning. This usually takes about 6 hours. Next week Kylie will be going in for one of the chemotherapy drugs to help stop her rejection from progressing. Our team has warned us that this drug can have a neurological...
