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Catch Up on Our Latest Posts
3/22 Baby Kylie
Kylie had another episode this morning... Even with the ventilator turned all the way up to 100, her Sats stayed at 84. Now imagine her not on the vent at 100% and you have what happened three days ago. I never want to go through that again. Once we get closer to...
2/5 Kylie
Well, after speaking with transplant team and no improvement in Kylie’s oxygen needs. We are heading to Children’s National in DC by ambulance to see if their transplant team can figure out what is going on with Kylie. The fear Is this Is related to her rejection. If...
2/4 Kylie
*** PRAYER REQUEST *** So our team found a small bacterial infection on Kylie’s recent cultures. They treated it with a high dose of antibiotics. They said that this bacteria doesn’t usually cause oxygen drops but it can. I was told that if we don’t see any...
