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Catch Up on Our Latest Posts
3/16 Kylie
Kylie had a good weekend They wanted to give a dose of IVIG before being discharged. We are working on being discharged in the next couple days and I know Kylie is so excited to finally break free of the hospital after almost 2 months inpatient. We will come back...
2/9 Kylie
Kylie will go under tomorrow to have a bronchoscopy to test for a fungal infection. Her oxygen requirements have rose slightly overnight. I talked to the head doctor of the lung transplant team at Children’s National and he truly believes this is related to AMR...
2/8 Update on Kylie Brooks
Children’s National has ran every test possible to rule out everything. The infectious Disease team has also been trying to help figure out what is wrong with Kylie. Texas was hoping that something simple was missed before flying Kylie down to Texas. The last test...
