A Note on Our Recent Newsletter Pause
We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused.
We are grateful for your understanding and patience as we worked diligently to resolve this issue. We are pleased to inform you that the problem has been fixed, and our newsletter will resume its regular schedule. Thank you for your continued support and engagement.
Catch Up on Our Latest Posts
11/17 Kylie Update
Kylie will be receiving her monthly IVIG tomorrow morning. This usually takes about 6 hours. Next week Kylie will be going in for one of the chemotherapy drugs to help stop her rejection from progressing. Our team has warned us that this drug can have a neurological...
9/22 Update on Daniel Gould
From Ray; “On Wednesday (day 20) Daniel broke out of the hospital. Truly a miracle. The two attending Physicians said that he did way better than anticipated. Daniel was one of the earliest patient discharges they had seen in the +60 years (combined experience) as...
9/17 Daniel Update
From Ray Gould, Daniel’s father: Every day for a week, I intended to sit down and post an update. One thing after another prevented that from happening. Sorry for the delay! Wow. It has been an incredible journey since my last update on day +9. On day +10, they did...
