A Note on Our Recent Newsletter Pause
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Catch Up on Our Latest Posts
7/28 Kylie
For the most part, Kylie had a good weekend. If you follow my personal page then you might have seen my updates on my story over the weekend. Kylie started the plasma treatment. This treatment takes all of her antibodies out of her body (the good and bad). She...
10/4 Brynn Update
Latest on Brynn, Day 13 of 24 is done! She's doing so well with this. We were able to see Dr Mangona today and she has one more treatment tomorrow on the ventricles and the next 2 weeks will be strictly for the Pituitary gland. As soon as we are done, I believe they...
10/4 Daniel
From Ashly Gould, about Daniel: “Back to Cooks Children’s for a boost of some red blood cells. We have been waiting for his body to make his own but it’s slow moving. The doc let him get down to 6.2 hemoglobin before transfusing. Praying this will be one of the last...
