2/12 Keith Winters

2/12 Keith Winters

I haven’t posted an update on Keith Winters in a while. My apologies! Keith has had 2 chemo treatments and is starting to feel the effects from them. Actually, we aren’t sure if all of it is the chemo or just the cancer that is causing so much pain. He has another...
2/9 Kylie

2/9 Kylie

Kylie will go under tomorrow to have a bronchoscopy to test for a fungal infection. Her oxygen requirements have rose slightly overnight. I talked to the head doctor of the lung transplant team at Children’s National and he truly believes this is related to AMR...
2/8 Update on Kylie Brooks

2/8 Update on Kylie Brooks

Children’s National has ran every test possible to rule out everything. The infectious Disease team has also been trying to help figure out what is wrong with Kylie. Texas was hoping that something simple was missed before flying Kylie down to Texas. The last test...
2/7 Shared from a Friend!

2/7 Shared from a Friend!

Shared from my friend, Hal Elrod: “Confessions of a Care Giver- Even When Things are OK Everything is going okay. Bonnie remains pleasant-natured, the ladies helping with her care are an incredible blessing, work is good, and for all practical purposes we’ve...
2/5 Kylie

2/5 Kylie

Well, after speaking with transplant team and no improvement in Kylie’s oxygen needs. We are heading to Children’s National in DC by ambulance to see if their transplant team can figure out what is going on with Kylie. The fear Is this Is related to her rejection. If...