!! Urgent Prayer Request !!
We were at the hospital for an appointment, Kylie started retracting and working harder to breathe. Her oxygen tank was maxed out and she continued to desat. Her heart rate was high also.
After what happened a week ago, I didn’t want to take any chances.
I went down to the Emergency Room.
It was a good thing we did because she had multiple desat episodes, where we had to bag her because her ventilator wasn’t bringing her SATs back up.
After talking with the transplant team, asking them what am I doing wrong that she comes home and then has to come right back. Is it something in the new house? Am I doing the breathing treatments wrong? I was reassured that it was nothing I was doing wrong but as a mom, we just feel responsible.
They think she needs another high dose of steroids and that it could possibly be the rejection progressing.
I’ll be honest, I’m not okay. I feel sick with worry. If it’s the rejection and it’s progressing this fast, I’m absolutely terrified what that means for my baby.
Kylie needs a miracle.
I feel desperate, please please pray that it’s not the rejection and that maybe she caught something viral.
My nerves are absolutely shot, seeing her SATs drop low and having to bag her, brings up a lot of fresh emotions.
I’m trying really hard to be strong. I NEED God to heal Kylie. It hurts so much seeing her like this.
I’m sorry to even admit this, but I feel so defeated. She was so happy to be
home…
PLEASE pray for Kylie.
