Update on Kylie from her mother, Ashley:
I don’t even know where to start. I can’t wrap my head around it all.
Kylie is in the Cardiac ICU (CICU). She is requiring help to breathe and keep her SATs up. Her heart rate is all over the place, it has jumped as high as 186. She is throwing up and we have not been able to get her back on full feeds.
So DC has repeated all the tests. Twice. And every test has come back negative. Even the RSV came back negative.
They have ran every test possible and everything is coming back negative.
It has me and the ICU doctors all completely speechless.
Something is clearly wrong with my baby. Something happened. She went from my happy normal baby before surgery and came out of surgery completely different.
We have looked at every possibility, except one…
rejection.
I have so many questions and no answers.
This has everyone completely blindsided.
The transplant team is doing multiple tests to see if this is rejection.
I am speechless. I just don’t understand.
PLEASE pray that we can get some answers and that this is not rejection.
The social worker helped us find lodging so my husband and I are taking turns staying with Kylie.
For those who have been asking the link below will take you to our go fund me and Venmo information. It will also show you all of Kylie’s news articles. I am working on adding a link for anyone who would like to sign up to be an organ donor.
We are eternally grateful for our donor.
Thank you so much to everyone who has helped us during this time with food, gas, parking etc.
I can’t tell you how much it means to us. You have taken a huge burden off of our shoulders.
I’m so sorry I haven’t been able to respond to messages and comments. It’s taking everything I have to be there for Kylie. Please don’t it take it personally. I love you all so much.
It’s hard to explain what I’m feeling. I’m feeling so many emotions.
Mostly, I’m terrified.
I’m praying nonstop and God keeps reminding me of Kylie’s verse.
“Trust in the Lord with all your heart and lean not on your own understanding” -Proverbs 3:5
I’m trying, God. I’m trying.
PLEASE pray for Kylie. We need a miracle. Again.
https://linktr.ee/AshleyOverfield — at Children’s National Hospital Washington DC.
