by lonniehamil | Jan 17, 2025 | Uncategorized
From Whitney Kasinger about Ella: Ella starts Phase 3 – Delayed Intensification – next Tuesday. This is a 50 day phase (January 14-March 4) bar any setbacks. If at any point she doesn’t make counts, the date is pushed forward. Here is her treatment...
by lonniehamil | Jan 17, 2025 | Uncategorized
This post is from Ashly Gould, about Daniel, 4 days ago (my apologies): This Christmas season looked a little different this year for our family. No holiday parties, Gaylord on ice, or mall Santa’s. Most the shopping was done online (which would have happened either...
by lonniehamil | Jan 17, 2025 | Uncategorized
Update on Kylie from Ashley: “Kylie came home over the weekend! God is good! So, we are pretending this is Christmas week Kylie was scheduled to have surgery tomorrow to have the port placed to start IVIG treatments to prevent her progressing towards rejection....
by lonniehamil | Jan 17, 2025 | Uncategorized
We are so very blessed to be doing what we’re doing. We are extremely grateful to all our sponsors and donors. We pray you have a beautiful Christmas and a very Happy New...
by lonniehamil | Jan 17, 2025 | Uncategorized
Update on Kylie from her mother: “I feel sick with worry Kylie is not having a good morning. After talking with her transplant team at TCH (Texas Children’s Hospital) this morning, we have discussed many options and next steps. If Kylie cannot come off the oxygen...
by lonniehamil | Jan 17, 2025 | Uncategorized
From Whitney, Ella’s mom: “We have been given the best Christmas Eve Eve gift! Ella’s port was accessed today for the first time since her surgery. I asked the nurse to use a 1.5” needle just because of what it’s been like so far and there’s no doubt she’ll be able to...
by lonniehamil | Dec 23, 2024 | Uncategorized
Kylie has been stable for the past 24 hours. Praise God! We are going to attempt to turn down her oxygen and see how she handles it. Please pray for a Christmas miracle! (She can’t go home until she is off the oxygen) I want her home for Christmas so bad (and healthy,...
by lonniehamil | Dec 23, 2024 | Uncategorized
Update on Kylie from her mother: Kylie is now requiring help breathing… and they are having to increase it slowly. She is at max settings, next step is a ventilator. She has not needed any help breathing since her transplant. I’m not okay, I’m devastated. If this...
by lonniehamil | Dec 23, 2024 | Uncategorized
Kylie is being admitted for pneumonia and pulmonary edema (fluid on her lungs). Please pray for...
by lonniehamil | Dec 23, 2024 | Uncategorized
Update on Kylie: Surgery has been cancelled… again Kylie is still fighting off RSV and is not able to go under anesthesia with her symptoms. Kylie has increased secretions in her trach and I’m suctioning her often. Her sats are ranging from 93-99. She has...
