7/17 Kylie Update

7/17 Kylie Update

Update from Ashley on Kylie: So, we just spoke with our transplant team. Kylie will be admitted on Monday and have surgery on Tuesday. She WILL have chest tubes inserted after surgery. I’ve heard these are painful. I was informed that back in May when they...
7/15 Update on Stephen

7/15 Update on Stephen

Update on Stephen Hayes: I made a short visit to the hospital earlier and Stephen had just gotten back to his room from surgery. If I understood correctly, they put in a plate to attach his ribs to. I can’t imagine how painful that could be, having dealt with a...
7/14 Kylie

7/14 Kylie

Update on Kylie: So we will be leaving for Texas towards the end of this week. Our transplant team is meeting with other specialist teams to coordinate the treatment plan. It seems like there is a lot more to all of this and it feels more serious than I originally...
7-13 Meet Stephen Hayes!

7-13 Meet Stephen Hayes!

Meet Stephen Hayes! Stephen was in a car accident on Friday (7/11). He sustained multiple fractures and injuries, some that caused his lungs to collapse. The focus the last two days has been on stabilizing his lungs and breathing. After getting that more stabilized,...
7/11 Update on Miss Kylie

7/11 Update on Miss Kylie

Update on Kylie:So, it looks like we will be leaving sometime next week.We still don’t have an exact date yet but our transplant team is working hard to schedule the surgeon, specialists etc.Our pulmonologist said the longest he is willing to wait is the end of...
Good News for Brynn!

Good News for Brynn!

Tiffany just commented on the last post. She posted,”The results came back clear! We will see her in another 3 months for an MRI.” Praise God for Brynn’s healing! Lonnie Help Us Be The Response Click...
7/11 Update on Miss Kylie

7-10-25 Update on Kylie

From Ashley: We just received some devastating news… my heart is breaking while typing this. We just received a phone call from our transplant team with some devastating news. As you know from yesterday’s update, Kylie has antibodies attacking her lungs....
7/10/25 Updates on Brynn

7/10/25 Updates on Brynn

My apologies for the delay in these posts! From Tiffany Burk (June 29th) “Brynn will be having a MRI of her brain Tuesday for her 3 month checkup. Since it is just for the brain with and without contrast we opted to not sedated her for it. This will be her first...
7/10/25 Update on Dylan

7/10/25 Update on Dylan

Remember Dylan Langholf, the young man that fished with us during his “Make a Wish” trip last year? (He’s on the far right in the picture) May 23, 2025 – Thank you for all the prayers, texts and calls. Dylan’s cancer has returned. He had his...
Prayers for Josh Lowe (7-3-25)

Prayers for Josh Lowe (7-3-25)

A few years back, we posted about Josh Lowe and a brain cavernoma. While we do not have any details at the moment, things looks like he is having issues again. We are asking for prayers for him and his family through this.   Help Us Be The Response Click...