by lonniehamil | Feb 20, 2025 | Uncategorized
Update on Adilayah:February is Noonan Syndrome and Heart awareness month. This month has been so special for me and our family ever since we have seen our baby girl fight through everything she has been through so far and she is SOOOO strong ! When we found out about...
by lonniehamil | Feb 20, 2025 | Uncategorized
Kaiden has had a pretty good day except a small moment this morning. His heart rate was all over the place suddenly. He runs around 110. But he was jumping to 150-180 then drops to the 80s. They did a neurological test and an EKG. But things looked good. They think he...
by lonniehamil | Feb 20, 2025 | Uncategorized
SMALL CELEBRATIONS TODAY! Xray from last night and this morning are showing small improvements. We are off of the meds that cause clotting and they said that he has better circulation in his leg and thru ECMO machine. Cultures are still coming back negative. Also...
by lonniehamil | Feb 20, 2025 | Uncategorized
Kaiden is between the same as yesterday but worse in certain areas. Brain- doing great. Has activity no concern at all. Lungs- still full of fluid. Some say xray looks a tiny better but others say it looks the same. Kidneys- might be trying to wake up now slowly. He...
by lonniehamil | Feb 20, 2025 | Uncategorized
Update on Kylie: Kylie was discharged over the weekend. I do want to say that TCH (Texas Children’s) ran every test that I requested. Some people from TCH saw my previous post and they came in Kylie’s room with a patient advocate and listened to all my concerns...
by lonniehamil | Feb 20, 2025 | Uncategorized
Kaiden has remained stable over night. Numbers are the same, kidneys are starting to put out very little urine so that’s good news. Brain activity is great. Color is his feet look a tab better. We are slowly pulling fluid off him so continuing baby steps. They...
by lonniehamil | Feb 20, 2025 | Uncategorized
From Whitney about Ella: “We are forever grateful for Arkansas Children’s! Super excited to go home today. Thank you for all the prayers over the last ten days!” What a tremendous relief! Thank you for countless prayers and, thank you Lord, for caring for Your...
by lonniehamil | Feb 20, 2025 | Uncategorized
Meet Kaiden! I am not directly involved with this family, but a prayer warrior shared this with me. Kaiden was born in October 2012 with a rare, but serious heart defect called Hypoplastic Left Ventricle. This was posted yesterday: This is really hard but I have...
by lonniehamil | Feb 20, 2025 | Uncategorized
From Ralph Foust about Shawna: “Our first appointment this morning at 6:45. The second was 7:15, and the last one was 10:00. The first two we got in early, but it was about 11:00 when we got to see the oncologist. He said everything looked almost the same as the last...
by lonniehamil | Feb 20, 2025 | Uncategorized
From Whitney about Ella: God gently reminded us today that He is here. He’s got this. He’s in control, and He’s got our baby girl safe in His arms. Now that we’re in 4K, Ella gets blood drawn every morning (instead of every two hours). This...
