by lonniehamil | Jan 17, 2025 | Uncategorized
Update on Kylie from her mother: “I feel sick with worry Kylie is not having a good morning. After talking with her transplant team at TCH (Texas Children’s Hospital) this morning, we have discussed many options and next steps. If Kylie cannot come off the oxygen...
by lonniehamil | Jan 17, 2025 | Uncategorized
From Whitney, Ella’s mom: “We have been given the best Christmas Eve Eve gift! Ella’s port was accessed today for the first time since her surgery. I asked the nurse to use a 1.5” needle just because of what it’s been like so far and there’s no doubt she’ll be able to...
by lonniehamil | Dec 23, 2024 | Uncategorized
Kylie has been stable for the past 24 hours. Praise God! We are going to attempt to turn down her oxygen and see how she handles it. Please pray for a Christmas miracle! (She can’t go home until she is off the oxygen) I want her home for Christmas so bad (and healthy,...
by lonniehamil | Dec 23, 2024 | Uncategorized
Update on Kylie from her mother: Kylie is now requiring help breathing… and they are having to increase it slowly. She is at max settings, next step is a ventilator. She has not needed any help breathing since her transplant. I’m not okay, I’m devastated. If this...
by lonniehamil | Dec 23, 2024 | Uncategorized
Kylie is being admitted for pneumonia and pulmonary edema (fluid on her lungs). Please pray for...
by lonniehamil | Dec 23, 2024 | Uncategorized
Update on Kylie: Surgery has been cancelled… again Kylie is still fighting off RSV and is not able to go under anesthesia with her symptoms. Kylie has increased secretions in her trach and I’m suctioning her often. Her sats are ranging from 93-99. She has...
by lonniehamil | Dec 23, 2024 | Uncategorized
Tiffany texted this to me just awhile ago: We just received the results. So many blessings that have happened the last several days. After I get my composure and settle into our news I will write about it. I just wanted everybody to know that we received the call that...
by lonniehamil | Dec 23, 2024 | Uncategorized
My son, Reed, and I had the pleasure of visiting the Burk family this evening. What sweet and humble people John and Tiffany are! The Burks and Brynn, shared a small part of their story for our Giving Tuesday video this year. Brynn had an MRI last Friday and we are...
by lonniehamil | Dec 23, 2024 | Uncategorized
What a day! Ella is settled into her room in 4K. She scarfed some Chipotle, is talking 90 to nothing, and is about to get her chemo. We’ll stay the night because she has chemo tomorrow too.  Her port is in a visibly different place. She just got beautiful blood...
by lonniehamil | Dec 23, 2024 | Uncategorized
She made counts! It’s surgery day. Thank you, Jesus and thank you Prayer Warriors!...
