by lonniehamil | Nov 7, 2024 | Uncategorized
From Tiffany about Brynn: “We started radiation on her pituitary gland this week. We were a little hesitant on how she would feel this week due to the side effects she might encounter with this area. God has been gracious to her. She has had some decrease in appetite...
by lonniehamil | Nov 7, 2024 | Uncategorized
Latest on Brynn, Day 13 of 24 is done! She’s doing so well with this. We were able to see Dr Mangona today and she has one more treatment tomorrow on the ventricles and the next 2 weeks will be strictly for the Pituitary gland. As soon as we are done, I believe...
by lonniehamil | Nov 7, 2024 | Uncategorized
From Ashly Gould, about Daniel: “Back to Cooks Children’s for a boost of some red blood cells. We have been waiting for his body to make his own but it’s slow moving. The doc let him get down to 6.2 hemoglobin before transfusing. Praying this will be one of the last...
by lonniehamil | Nov 7, 2024 | Uncategorized
Shared by Tiffany: 7 treatments down and 17 to go. Brynn is truly a rockstar with sitting still. Honestly, my anxiety would be all over the place if I had this thing on my face. She has started getting a little tired afterwards and she started smelling chlorine really...
by lonniehamil | Nov 7, 2024 | Uncategorized
Kylie was rushed to the emergency room Sunday evening. Somehow her GJ tube came out. We aren’t sure how this happened because it didn’t get caught on anything and she wasn’t in pain but she had bodily fluids spilling out and that’s how we noticed it hanging halfway...
by lonniehamil | Nov 7, 2024 | Uncategorized
From Ray; “On Wednesday (day 20) Daniel broke out of the hospital. Truly a miracle. The two attending Physicians said that he did way better than anticipated. Daniel was one of the earliest patient discharges they had seen in the +60 years (combined experience) as...
by lonniehamil | Sep 19, 2024 | Uncategorized
From Ray Gould, Daniel’s father: Every day for a week, I intended to sit down and post an update. One thing after another prevented that from happening. Sorry for the delay! Wow. It has been an incredible journey since my last update on day +9. On day +10, they did...
by lonniehamil | Sep 19, 2024 | Uncategorized
Update on Kylie: Kylie is 10 months old today I cannot believe she will be one year old in two months. Kylie had her first test done to see if there is any concern for cancer. The test came back NEGATIVE! Praise the Lord She still has one more test to do but we have...
by lonniehamil | Sep 19, 2024 | Uncategorized
From Daniel’s dad: “Daniel has had a good week. His symptoms remain minimal and manageable with medication. Although his appetite has decreased, he is still eating enough to avoid a feeding tube. We are very thankful for these answered prayers. Each day, he maintains...
by lonniehamil | Sep 19, 2024 | Uncategorized
From Tiffany Burk: “We are all happy! MRI showed Tumor looked much smaller. 24 treatments instead of 30. Starting the 16th. She was able to make her mask today and do another MRI to show ventricle area. We appreciate the prayers. We are on our way home in this rainy...
