by lonniehamil | May 19, 2025 | Uncategorized
From Chelsea on Friday: Update on Aj: Today we spent most of the day running test..An eeg a catscan and a eye exam.. an mri was mentioned but they ran out of time …neuro came in and explained there still was nothing they could do at this time to help his...
by lonniehamil | May 19, 2025 | Uncategorized
From Chelsea We got his hair washed and combed all the glue out, now mommy snuggles…He’s finally opening his eyes again they don’t look exactly like they did before but it’s progress and I’ll take it… We will attempt to wein off...
by lonniehamil | May 19, 2025 | Uncategorized
This from Chelsea at around 2 pm: Dr came in last night and said there is clotting in the brain..they would normally give blood thinners but considering his brain is bleeding that isn’t an option at this time… a special neuro team will be in mid afternoon...
by lonniehamil | May 19, 2025 | Uncategorized
This little man was having trouble breathing last week. His parents, Chelsea and Antonio, took him to the hospital. He was initially diagnosed with COVID. He seemed to be getting some better, and then yesterday he had a stroke. The mri came back and showed bleeding on...
by lonniehamil | May 19, 2025 | Uncategorized
Well, Miss Kylie decided she wanted to have a sleepover in the Emergency Room last night. While I was giving her medicine to her last night, I turned for two seconds to grab the water to flush her meds and she grabbed her extension and pulled her GJ tube right out....
by lonniehamil | May 19, 2025 | Uncategorized
From Daniel’s Dad: Yesterday was a day to cherish as we celebrated our son’s seventh birthday with a full slate of activities. It was both a sweet and sobering time—a moment to reflect and give thanks. Since the biopsy, Daniel has been on a high dose of...