2/3 Update on Kylie

2/3 Update on Kylie

Update on Kylie from mom: Kylie will be transported via med flight to Texas Children’s Hospital today around 12pm.  FINALLY! We heard from the Kangaroo Crew (TCH’s transport team) and they are heading to DC. I will be heading to Texas shortly. I was...
1/31 Meet Miss Adaliyah

1/31 Meet Miss Adaliyah

Meet Adaliyah “She was born prematurely at 26 weeks weighing 1lb and 14oz . When she was about 2 months old they discovered she has pulmonary valve stenosis and chronic lung disease so she was transported to Cooks Children’s hospital, in Fort Worth, to get a...
1/31 Update on Jerry Hamon

1/31 Update on Jerry Hamon

From Patty about Jerry Hamon: “It’s been a really long, difficult week. I haven’t posted anything on here. I haven’t contacted anyone. Jerry is still not doing well. He is still not eating. He is Carrus Rehab Hospital in Sherman. I know many of you have been concerned...
1/31 Kylie

1/31 Kylie

Update on Kylie from her mom: Y’all! This week has been so wild.  We also received some very terrifying news from our transplant team.  Our transplant pulmonologist at TCH (Texas Children’s Hospital) called in his connections at Children’s National in DC, he...
1/29 Kylie

1/29 Kylie

Some good news (finally!)  And some drama  Kylie has been stable the past 24 hours. This morning they started trying to ween her oxygen and see how she handles it, she is doing well on lower settings so far. She seems so much better  Texas Children’s still wants her...
1/28 Kylie Update

1/28 Kylie Update

Update on Kylie from her mother, Ashley: I don’t even know where to start. I can’t wrap my head around it all. Kylie is in the Cardiac ICU (CICU). She is requiring help to breathe and keep her SATs up. Her heart rate is all over the place, it has jumped as...