by lonniehamil | Feb 20, 2025 | Uncategorized
Update on Brynn from Tiffany: “Some days she still just needs rest. We are truly grateful she is doing so well. John and I were reminded last night how things could have been very different for her and still can. We ask for continued prayers for her as she works...
by lonniehamil | Feb 20, 2025 | Uncategorized
Update on Adilayah:February is Noonan Syndrome and Heart awareness month. This month has been so special for me and our family ever since we have seen our baby girl fight through everything she has been through so far and she is SOOOO strong ! When we found out about...
by lonniehamil | Feb 20, 2025 | Uncategorized
Kaiden has had a pretty good day except a small moment this morning. His heart rate was all over the place suddenly. He runs around 110. But he was jumping to 150-180 then drops to the 80s. They did a neurological test and an EKG. But things looked good. They think he...
by lonniehamil | Feb 20, 2025 | Uncategorized
SMALL CELEBRATIONS TODAY! Xray from last night and this morning are showing small improvements. We are off of the meds that cause clotting and they said that he has better circulation in his leg and thru ECMO machine. Cultures are still coming back negative. Also...
by lonniehamil | Feb 20, 2025 | Uncategorized
Kaiden is between the same as yesterday but worse in certain areas. Brain- doing great. Has activity no concern at all. Lungs- still full of fluid. Some say xray looks a tiny better but others say it looks the same. Kidneys- might be trying to wake up now slowly. He...
by lonniehamil | Feb 20, 2025 | Uncategorized
Update on Kylie: Kylie was discharged over the weekend. I do want to say that TCH (Texas Children’s) ran every test that I requested. Some people from TCH saw my previous post and they came in Kylie’s room with a patient advocate and listened to all my concerns...
