A Note on Our Recent Newsletter Pause
We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused.
We are grateful for your understanding and patience as we worked diligently to resolve this issue. We are pleased to inform you that the problem has been fixed, and our newsletter will resume its regular schedule. Thank you for your continued support and engagement.
Catch Up on Our Latest Posts
3/16 Kylie
Kylie had a good weekend They wanted to give a dose of IVIG before being discharged. We are working on being discharged in the next couple days and I know Kylie is so excited to finally break free of the hospital after almost 2 months inpatient. We will come back...
7/28 Kylie
For the most part, Kylie had a good weekend. If you follow my personal page then you might have seen my updates on my story over the weekend. Kylie started the plasma treatment. This treatment takes all of her antibodies out of her body (the good and bad). She...
7/30 Steve Second Update
A text from Kim today: "The last couple of days have been crazy. Saturday, bad, bad! These last four days (including today) have been really good days, each one better than the last. He is awake and alert. Trying to communicate. His numbers are good and improving each...


