A Note on Our Recent Newsletter Pause
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Catch Up on Our Latest Posts
3/22 Baby Kylie
Kylie had another episode this morning... Even with the ventilator turned all the way up to 100, her Sats stayed at 84. Now imagine her not on the vent at 100% and you have what happened three days ago. I never want to go through that again. Once we get closer to...
10/9 Adam Doyle Update
I just received this text from David Doyle: “Good morning Lonnie. Quick Adam update. He completed his six rounds/weeks of chemo last Wednesday. They’ll do a cystoscopy the last week of October to see what the next series of treatments will look like. His oncologist...
9/26 Update on Kylie
Update on Kylie from her momma: "We met with our new complex care team at Children’s National in DC. Our new doctor and team is absolutely amazing and very helpful and kind. I'm grateful they are now apart of Kylie's care. We have been desperately trying to get Kylie...


