A Note on Our Recent Newsletter Pause

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Catch Up on Our Latest Posts

10/7 Update on Ella

10/7 Update on Ella

From Josh about Ella: Update on Our Brave Girl  Today is Day 1 of Round 2 in her 5-day Nelarabine chemo treatment — another important step in this journey of healing.  Before starting this round, the doctors checked all her labs, and her bladder, kidneys, and blood...

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1/29 Kylie

Some good news (finally!)  And some drama  Kylie has been stable the past 24 hours. This morning they started trying to ween her oxygen and see how she handles it, she is doing well on lower settings so far. She seems so much better  Texas Children’s still wants her...

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1/28 Kylie Update

Update on Kylie from her mother, Ashley: I don't even know where to start. I can't wrap my head around it all. Kylie is in the Cardiac ICU (CICU). She is requiring help to breathe and keep her SATs up. Her heart rate is all over the place, it has jumped as high as...

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