A Note on Our Recent Newsletter Pause
We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused.
We are grateful for your understanding and patience as we worked diligently to resolve this issue. We are pleased to inform you that the problem has been fixed, and our newsletter will resume its regular schedule. Thank you for your continued support and engagement.
Catch Up on Our Latest Posts
#2 2/26 Kylie
I'm lost for words... I don't even know what to say.... So, we were asked to stay in Texas for 3 months... Kylie requires a treatment that is relatively new. It's our last option. We have done everything else that can be done for slowing down the rejection. Being...
11/21 Kylie Update
From Ashley: "Well, it looks like Kylie will be admitted the week after Thanksgiving at Children’s National in DC for the chemo drug treatment. (We are still waiting on the exact date.) Kylie has not been feeling well the past 24 hours and has been vomiting. I am...
11/17 Kylie Update
Kylie will be receiving her monthly IVIG tomorrow morning. This usually takes about 6 hours. Next week Kylie will be going in for one of the chemotherapy drugs to help stop her rejection from progressing. Our team has warned us that this drug can have a neurological...
