A Note on Our Recent Newsletter Pause
We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused.
We are grateful for your understanding and patience as we worked diligently to resolve this issue. We are pleased to inform you that the problem has been fixed, and our newsletter will resume its regular schedule. Thank you for your continued support and engagement.
Catch Up on Our Latest Posts
5/16 Update on AJ
Aj had a wonderful night no help breathing he's doing it all on his own..we tried a bottle today he latched sucked and swallowed like he should they were very impressed. He did hold his breathe a couple times so they are gonna tube feed one more day and ease him back...
1/10 Lindsey
Lindsey saw the eye doctor and they ran some tests and determined that from what they saw that so far everything looks good and normal. She will go back on the 20th for more follow up.
1/10 Kylie
We have a surgery date! Kylie will have surgery to place her port in her chest on January 24. She will be admitted the day before and depending on how surgery goes she will be discharged a few days later. We will be traveling to Texas for her 3 month bronchoscopy...

