A Note on Our Recent Newsletter Pause
We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused.
We are grateful for your understanding and patience as we worked diligently to resolve this issue. We are pleased to inform you that the problem has been fixed, and our newsletter will resume its regular schedule. Thank you for your continued support and engagement.
Catch Up on Our Latest Posts
7-10-25 Update on Kylie
From Ashley: We just received some devastating news... my heart is breaking while typing this. We just received a phone call from our transplant team with some devastating news. As you know from yesterday's update, Kylie has antibodies attacking her lungs. If you...
1/31 Kylie
Update on Kylie from her mom: Y'all! This week has been so wild. We also received some very terrifying news from our transplant team. Our transplant pulmonologist at TCH (Texas Children’s Hospital) called in his connections at Children’s National in DC, he spoke...
1/29 Kylie
Some good news (finally!) And some drama Kylie has been stable the past 24 hours. This morning they started trying to ween her oxygen and see how she handles it, she is doing well on lower settings so far. She seems so much better Texas Children’s still wants her...
