A Note on Our Recent Newsletter Pause
We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused.
We are grateful for your understanding and patience as we worked diligently to resolve this issue. We are pleased to inform you that the problem has been fixed, and our newsletter will resume its regular schedule. Thank you for your continued support and engagement.
Catch Up on Our Latest Posts
7/20 Kylie Update
Kylie and her dad will be flying to Houston today. Our transplant team suggested that one parent fly with Kylie, and the other parent drive (so we have a vehicle while in Houston.) They believe driving that far would be too much stress on Kylie's body, and we don't...
2/18 Kaiden
Kaiden has had a pretty good day except a small moment this morning. His heart rate was all over the place suddenly. He runs around 110. But he was jumping to 150-180 then drops to the 80s. They did a neurological test and an EKG. But things looked good. They think he...
2/17 2nd Update on Kaiden
SMALL CELEBRATIONS TODAY! Xray from last night and this morning are showing small improvements. We are off of the meds that cause clotting and they said that he has better circulation in his leg and thru ECMO machine. Cultures are still coming back negative. Also...
