A Note on Our Recent Newsletter Pause
We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused.
We are grateful for your understanding and patience as we worked diligently to resolve this issue. We are pleased to inform you that the problem has been fixed, and our newsletter will resume its regular schedule. Thank you for your continued support and engagement.
Catch Up on Our Latest Posts
7/31 Kylie
After taking the chest tube out yesterday her lungs slowly started getting worse. After about 12 hours the team decided to put Kylie on lasix to see if that would help her lungs look better. We did a repeat X-ray around 12am and 4am. We finally were starting to see...
7-10-25 Update on Kylie
From Ashley: We just received some devastating news... my heart is breaking while typing this. We just received a phone call from our transplant team with some devastating news. As you know from yesterday's update, Kylie has antibodies attacking her lungs. If you...
7/10/25 Updates on Brynn
My apologies for the delay in these posts! From Tiffany Burk (June 29th) "Brynn will be having a MRI of her brain Tuesday for her 3 month checkup. Since it is just for the brain with and without contrast we opted to not sedated her for it. This will be her first MRI...
