A Note on Our Recent Newsletter Pause
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We are grateful for your understanding and patience as we worked diligently to resolve this issue. We are pleased to inform you that the problem has been fixed, and our newsletter will resume its regular schedule. Thank you for your continued support and engagement.
Catch Up on Our Latest Posts
3/25 Kylie
Well, we received some bad news yesterday... The treatment did not work and the antibodies attacking her lungs are still very strong... I feel very discouraged because I really thought it would at least weaken... The one specific antibody called DQ7 is the one we...
2/23 Kylie
Update on Kylie (from Sunday) Good Morning Houston! I swear to you once we landed Kylie perked up and has been more like herself again. It was so weird. She must be a Houston girl at heart. Transplant team came by early this morning with a plan. Kylie was placed back...
2/19 Update on Kylie
Edit: Flight to Texas has been rescheduled until tomorrow morning because of restricted air space above DC. So far Kylie's brain scans are coming back showing no negative signs. Thank You Jesus. They did try to ween her off the ventilator but she ended up needing more...
