A Note on Our Recent Newsletter Pause
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Catch Up on Our Latest Posts
7-10-25 Update on Kylie
From Ashley: We just received some devastating news... my heart is breaking while typing this. We just received a phone call from our transplant team with some devastating news. As you know from yesterday's update, Kylie has antibodies attacking her lungs. If you...
11/14 Update on Henry Smith
Good News on Henry, from his dad: Good morning my friends. We got the latest biopsy results and Henry is cancer free! In and of itself this is awesome news. And hopefully now they’ll be able to use the unrelated donor. If they use the unrelated donor we should be...
11/14 Joe Conn’s Surgery Today
Well today is the day. Joe Conn is finally able to have his heart bypass surgery. It will either be a triple or quintuple. They’ll know once they get in there. He’s first on the list this morning. Surgery should take 4-6 hours. He’s pretty calm Please keep him in your...


