A Note on Our Recent Newsletter Pause
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Catch Up on Our Latest Posts
7/14 Kylie
Update on Kylie: So we will be leaving for Texas towards the end of this week. Our transplant team is meeting with other specialist teams to coordinate the treatment plan. It seems like there is a lot more to all of this and it feels more serious than I originally...
12/2 Update on Henry
The ATG (chemo) Henry is receiving this weekend is messing with his blood pressure. They are treating with fluids, epinephrine, hydrocortisone and albumin. They slowed the flow of the ATG which should have been given over six hours, so it could take up to 12 hours for...
12/1 Update on Henry Smith
12/1 update on Henry from his dad: "Good morning all. Well today is a new drug day. They’ll be adding two drugs, Thiotepa and ATG. Both work to kill the bone marrow. Side effects can include nausea and vomiting for both. The Thiotepa is excreted through the skin so...
