A Note on Our Recent Newsletter Pause
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Catch Up on Our Latest Posts
3/29 Update on Miss Kylie
Miss Kylie had to go on higher ventilator settings. She was having a lot of belly breathing and retractions. This is exactly the pattern I saw when we were discharged. She was doing really well then the belly breathing started then higher breathing support was needed....
3/2 Update on Kylie
Kylie isn't having the best day today. It's weird because one day she will be happy then the next she does not seem like herself. Today she seems depressed and weak. I've tried getting her on the play mat to play but she doesn't seem interested. They are talking...
#2 2/26 Kylie
I'm lost for words... I don't even know what to say.... So, we were asked to stay in Texas for 3 months... Kylie requires a treatment that is relatively new. It's our last option. We have done everything else that can be done for slowing down the rejection. Being...
